Day 156

​Sachin slept just over 5 hours last night. I tried hard to get him to sleep again but had no success.
After breakfast, he used his Ipad on the sofa. As I dreaded all day, at 4:48pm, he did have a seizure and fortunately he was on the sofa. It was after 56 days that he has had a seizure. This was clearly the longest he has gone without seizure in over 4 years. about six months ago, he had seizures, at an average of every six days. He was on 1200mg of tegretol then.
After that, we introduced 200mg of Epilim on top of the tegretol. Then gradually increased the dosage as we started seeing positive results. Now he has 1200mg of Tegretol and 900mg of Epilim daily.
Whenever Sachin slept less than 6 hours, I gave him and extra 200 to 300mg of Epilim, depending on my judgement of the severity of the risk of a seizure. Today, His seizure occurred before I could give him his extra dosage.
Anyway, hoping that he will do better in his next stretch.